*** UPDATE - some decent sleep achieved!!! ***
Hi everyone,
Just wanted to give you an update.
We were finally able to get Michael to sleep for about 8.5hours last night! This is a huge improvement! It was a bit broken up, but still around 8.5hrs. We got him to sleep I think around 10pm and he slept till 4am when I woke and then he continued to sleep till 6:30. As for me, I must have joined him in sleep at around 11.30pm and slept till ~4am, so I got 4.5hrs last night, but I've been doing ok since I've been averaging 4-5hrs per night lately anyhow. In the past, I have engaged in some pretty calculated poly-phasic sleep patterns before that I usually manage with 20-minute naps, single cycle 90-min naps, and now breathing and mindfulness meditation. Food is a different story, but I am surviving.
I am so grateful to all of you for all your love and support. It gives me the strength I need to stay strong for Michael and all his friends and family and of course for myself. I am also so grateful that the pieces in my life are flexible enough to make time to be here for Michael. Like, besides trying to start up my music studio (www.gofundme.com/yeonhee) I am just working a flexible part-time job at Cinquegranelli Montessori as administrative assistant where my boss is very understanding of my situation. Gail Longo, is such a sweet, patient, and kind woman. I took Michael with me to work the other day and she gave us 6 hours of her time and engaged in such honest, meaningful, and difficult conversation with us. I am so humbled to be able to work with this wonderful woman.
Today, Michael has been much more coherent. He seems pretty much back to normal, but more open to talking with other people in the cute way he talks with me.. which is really just preserving beauty and staying true to the innocent soul and not putting on some kind of ego face just to be macho or something. We have to realize that we all have different social identities when it comes to how we talk with our friends, our family, strangers, lovers, etc. and that's how we relate to eachother. And by speaking a little differently sometimes, this is just him in his truest form where he wants to connect with others in a beautiful honest way. When we're alone-- Michael and I share some vastly varied English dialects. We go from pseduo-Asian, to Russian, to Indian, to where-ever pretty seamlessly and that's just a way that we connect. I mean, we are constructing a new language after all and so we are opening ourselves up to all the sounds of the world (trying to reach back to infancy, when we all had access to all the world's sounds) and for me, having studied linguistics and learned several languages, it's a pretty interesting way to explore language and meaning and heart.
I will be having him keep a journal and take pictures and videos of him so he can look to see that he is real and to help ground him. He has asked me to post some of these things to share with you all. So, some of that will be coming soon so you can see inside his heart.
He also welcomes visits from friends, because really-- that's what he wants the most. Real community. And love, which we define as shared vulnerability. He is sharing his vulnerability with you all now, and this is our opportunity to share in vulnerability back and respond with compassion and understanding instead of fear and shunning.
If you want to visit, just give me a text and I'll let you know if we're home.
Also, i think in the future something we will be doing is having open movie nights (open to everyone) at our home where we gather to watch a film very intentionally with the purpose of having discussion about the film (or show) after watching it-- to discuss the message of what we intake and the social implications.. because so many people mindlessly watch and intake ideas and concepts without realizing what affect they have on our perception of reality. Films, music, advertisements, etc.
Much Love,
Yeon-Hee
Hi everyone,
Just wanted to give you an update.
We were finally able to get Michael to sleep for about 8.5hours last night! This is a huge improvement! It was a bit broken up, but still around 8.5hrs. We got him to sleep I think around 10pm and he slept till 4am when I woke and then he continued to sleep till 6:30. As for me, I must have joined him in sleep at around 11.30pm and slept till ~4am, so I got 4.5hrs last night, but I've been doing ok since I've been averaging 4-5hrs per night lately anyhow. In the past, I have engaged in some pretty calculated poly-phasic sleep patterns before that I usually manage with 20-minute naps, single cycle 90-min naps, and now breathing and mindfulness meditation. Food is a different story, but I am surviving.
I am so grateful to all of you for all your love and support. It gives me the strength I need to stay strong for Michael and all his friends and family and of course for myself. I am also so grateful that the pieces in my life are flexible enough to make time to be here for Michael. Like, besides trying to start up my music studio (www.gofundme.com/yeonhee) I am just working a flexible part-time job at Cinquegranelli Montessori as administrative assistant where my boss is very understanding of my situation. Gail Longo, is such a sweet, patient, and kind woman. I took Michael with me to work the other day and she gave us 6 hours of her time and engaged in such honest, meaningful, and difficult conversation with us. I am so humbled to be able to work with this wonderful woman.
Today, Michael has been much more coherent. He seems pretty much back to normal, but more open to talking with other people in the cute way he talks with me.. which is really just preserving beauty and staying true to the innocent soul and not putting on some kind of ego face just to be macho or something. We have to realize that we all have different social identities when it comes to how we talk with our friends, our family, strangers, lovers, etc. and that's how we relate to eachother. And by speaking a little differently sometimes, this is just him in his truest form where he wants to connect with others in a beautiful honest way. When we're alone-- Michael and I share some vastly varied English dialects. We go from pseduo-Asian, to Russian, to Indian, to where-ever pretty seamlessly and that's just a way that we connect. I mean, we are constructing a new language after all and so we are opening ourselves up to all the sounds of the world (trying to reach back to infancy, when we all had access to all the world's sounds) and for me, having studied linguistics and learned several languages, it's a pretty interesting way to explore language and meaning and heart.
I will be having him keep a journal and take pictures and videos of him so he can look to see that he is real and to help ground him. He has asked me to post some of these things to share with you all. So, some of that will be coming soon so you can see inside his heart.
He also welcomes visits from friends, because really-- that's what he wants the most. Real community. And love, which we define as shared vulnerability. He is sharing his vulnerability with you all now, and this is our opportunity to share in vulnerability back and respond with compassion and understanding instead of fear and shunning.
If you want to visit, just give me a text and I'll let you know if we're home.
Also, i think in the future something we will be doing is having open movie nights (open to everyone) at our home where we gather to watch a film very intentionally with the purpose of having discussion about the film (or show) after watching it-- to discuss the message of what we intake and the social implications.. because so many people mindlessly watch and intake ideas and concepts without realizing what affect they have on our perception of reality. Films, music, advertisements, etc.
Much Love,
Yeon-Hee
RSS Feed
